A rare disease stopped this woman from standing until she was 15 – and now she’s working to help others
- Lynsey Chediak was 15 before she overcame arthrogryposis and was able to stand.
- There are more than 300 million people in the world with a rare disease. It’s Rare Disease Day on 29 February, which shines a spotlight on how difficult it it can be for patients to receive a diagnosis and treatment.
- The World Economic Forum is working on data-sharing frameworks to speed up the diagnosis of rare diseases.
Lynsey Chediak remembers exactly where she was when she stood up straight for the first time – outside a cinema.